Lexi, 2, battles leukemia; Santa Barbara girl in need of marrow donor
Lexi, 2, battles leukemia; Santa Barbara girl in need of marrow donorA week before Lexi would blow out the candles on her second birthday cake, the talkative toddler was diagnosed with a rare and often terminal cancer.
Unsuspicious symptoms – a few fevers and ear infections – led to a diagnosis that would seem nightmarishly unreal to any parent: acute myeloid leukemia.
After a harrowing battle against the illness, and a short stint in remission, Lexi’s family is now reaching out to the community to find a donor with matching bone marrow.
“She’s young and strong,” said Kathrine Krasmoff, Lexi’s mother. She was told that there is a 65 to 70 percent success rate with such transfusions, but this number could be low for Lexi because of her age.
“We are hoping the chances are much bigger than that,” Krasmoff said.
Krasmoff described her daughter as being an energetic, caring, 2-year-old with communication skills that wowed all the nurses.
“Everywhere we go she has this personality,” Krasmoff said. “She just starts talking to everyone.”
She also helps her mother take care of her three-month-old brother Caleb, telling her when his diaper needs changing or cleaning up messes he’s made without being asked.
When either she or her husband, Jonathan Krasmoff, needs inspiration, Lexi is the one to provide it.
“Her doctor said ‘Just look to Lexi and let her lead the way,’” Krasmoff said, “and that’s what we live by. It’s so true.”
The toddler is blissfully oblivious and blessedly cooperative said her mother. She never complains of going to the hospital. When asked what she thought cancer is, the toddler responded “platelets and chemo,” Krasmoff said.
After diagnosis last September, the Krasmoffs began to work rigorously with their doctor. Lexi went through chemo treatments about once a month for six months.
It seemed as though their nightmare had ended this February. Her treatments concluded and after a series of tests her doctors confirmed that the cancer had gone into remission.
“‘She went through this like a breeze,’” her doctor told Krasmoff, “‘the chance for a relapse is so slim at this point.
Bone Marrow Donors - News
After a harrowing battle against the illness, and a short stint in remission, Lexi's family is now reaching out to the community to find a donor with matching bone marrow. “She's young and strong,” said Kathrine Krasmoff, Lexi's mother.
A bone marrow drive is being held to find a suitable donor for Kendrick Joubert, who has sickle cell disease. A bone marrow drive will be held for 14-year-old Kendrick Joubert to identify possible bone marrow donors from 9 am to 1 pm Aug.
She has become an advocate for recruiting donors through the bethematch.org website. Eighty-nine donors signed up during a Hays bone marrow donor drive in 2008, Loren Boos said. "They take out the blood, and it goes through a dialysis machine," Teresa
A bone marrow donor refused to proceed with his donation after a machine stopped working during the operation. Data show that around 20 percent of bone marrow donors in China break their promise. mobile news readers share their views with
The Fishers are urging people to visit kidz1stfund.com and fanconi.org to learn more about the disease and are encouraging people to sign up to be a bone marrow donor. To be placed in the National Bone Marrow Registry, all that is need is a simple
Avichai's Story — Emotional meeting of stem cell donor Ziv with cancer
Avichai Fund was just seven months old when his parents got the diagnosis that their first born son was seriously ill and in need of a stem cell transplant to get better. Miraculously, Ezer Mizion’s Bone Marrow Donor Registry found Ziv Schwartzman, who was a perfect match.
Ziv had joined Ezer Mizion’s Registry as an IDF (Israel Defense Forces) recruit and his lab testing was sponsored by the George and Pamela Rohr Donor Pool in memory of Charlotte Rohr. Ziv, Avichai, and their families met to celebrate their personal miracle a year after the successful transplant.
Ezer Mizion’s Registry is the world’s fourth-largest Bone Marrow Registry. Located in Israel, it works with transplant centers in over 40 countries, matching patients with stem cell donors and facilitating lifesaving bone marrow transplants throughout the world. www.ezermizion.
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Be the Match - National Marrow Donor Program (NMDP)
Provides marrow transplants from volunteer unrelated donors to patients with leukemia, aplastic anemia and other potentially life-threatening diseases.
Donation FAQs - Be The Match bone marrow donation information
Answers to common questions about the bone marrow donation process, risks, and side effects. For donors on the Be The Match Registry.
DKMS Americas
DKMS connects bone marrow and stem cell donors with patients who have leukemia and other blood diseases.
Bone Marrow Donors Worldwide (BMDW)
A project for the collecting HLA phenotypes of volunteer bone marrow donors and cord blood units.
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The National Marrow Donor Program ® (NMDP) is entrusted to operate the federally ... and can be collected from either the bone marrow or the blood stream. ...